Finally Diagnosed: A Twenty-Two-Year Journey

In 2020 I was a guest on the podcast Once Upon a Gene. The host and I had a long discussion about Emily‚Äôs undiagnosed journey. I was very clear with the host (and now friend), Effie Parks, that I was okay not having a diagnosis. I knew a diagnosis was not going to change EmilyContinue reading “Finally Diagnosed: A Twenty-Two-Year Journey”