Disabled Children and Traveling Challenges

When Todd and I were married, we dreamed of all the places we would travel to and the adventure we would share. Before we had children, we would take trips. We mostly traveled the Pacific Northwest and a few trips to Mexico. We did not have the finances to travel overseas. One day, after theContinue reading “Disabled Children and Traveling Challenges”

Disability, Communication, and Covid

This week we all tested positive for Covid. This has been challenging for our family. We usually work as a team. If one person is down, another can pick up the slack. (Think Brené Brown’s GAP plan.) Well, we are all down. This would be okay if we could all retreat to our corners andContinue reading “Disability, Communication, and Covid”

Caregiver for a Season, Part of Our Lives Forever

As we walked into the store, Emily let out a squeal or a scream. Well, it was a high-pitched reaction that vocalized extreme emotion. Emily doesn’t regulate her emotions the same way we do. She may go from a cry to a laugh in a millisecond. Her squeals told me she was experiencing an emotionalContinue reading “Caregiver for a Season, Part of Our Lives Forever”

Clean Teeth and Kindness

As I take Emily to the restroom to begin her evening routine, I engage in my mental routine to prepare. My inner chatter commences. You can do hard things. You were made for this. You are a caregiving badass. Tonight will go well. You have enough energy left to do this. You are doing thisContinue reading “Clean Teeth and Kindness”