Pismo is Making Waves in Accessibility

There is much we can find each day to complain about. These past few weeks, I have had some bones to pick and axes to grind over so many issues. Health insurance, parking, ADA awareness, and accessibility, just to name a few. Often, when a conversation starts about politics or the government, there are axesContinue reading “Pismo is Making Waves in Accessibility”

Emily Goes to the Lizzo Show

For all of you who came back this week to get the Lizzo concert 411, I want to say THANK YOU. I appreciate the support I received via texts, calls, and posts prior to the event. The encouragement and cheerleading did not go unrecognized and were needed. I barely slept on Thursday night. The anticipationContinue reading “Emily Goes to the Lizzo Show”

Disability and the Church: Our Family’s Story

When I was pregnant with Justin, I met a neighbor who was pregnant too. It turns out our children were due less than a week apart. We became fast friends. One week she invited us to attend her church. Todd and I had never attended church together in our marriage. I would go alone atContinue reading “Disability and the Church: Our Family’s Story”

The Gift Of Unlearning: Raising a Child with Intellectual Disabilities

I remember the day Emily was born. She came along twenty-two months after her brother, Justin. It was such an easy delivery. The doctor barely arrived in time to catch Emily as she emerged from the safety of my womb. I remember teasing the doctor that she shouldn’t get paid to come in just inContinue reading “The Gift Of Unlearning: Raising a Child with Intellectual Disabilities”

Different Path and Different Journey

“Normality is a paved road: It’s comfortable to walk, but no flowers grow.”-Vincent Van Gogh  Cradled in her arms is her first grandchild. At two months of age, Wyatt craves the comfort of a warm embrace and the sway of arms that hold him while he sleeps. As I watch Patti gently rocking Wyatt toContinue reading “Different Path and Different Journey”

Little Things We Take for Granted, are Big to Others

One of the greatest gifts I have received from having a child with developmental and physical delays is that I no longer take things for granted. During my pregnancy with Justin, I devoured the What to Expect books like Crème Brûlée. They were treasured maps and guides. When Justin not only met but exceeded whatContinue reading “Little Things We Take for Granted, are Big to Others”

What? That’s Not a Disability

Don’t do it. Don’t do it. My mind recalls a reel on Instagram, “Girl, don’t do it!” You don’t share your thoughts on these things. It is better to let it go. If I don’t say something about this, who will? What are you afraid of? Being controversial? Making someone upset? Remember that thing weContinue reading “What? That’s Not a Disability”

Time Lies

It’s only an hour, I thought. How can an hour be so disruptive? I was on a Zoom call with Bobby Kountz this weekend and he was discussing Timelines and said Time “lies”. He was discussing how we often take time for granted. We postpone things until something happens or changes. We tend to kickContinue reading “Time Lies”

A Letter of Gratitude to The Wiggles

This morning Todd and I were trying to reset Emily’s FireTV. Nothing we did seemed to restore YouTube. We worked at it for what felt like hours, but it was only ten minutes. What are we going to do if we cannot get this fixed? How will we survive without The Wiggles? Todd and IContinue reading “A Letter of Gratitude to The Wiggles”