Some Days Are Like That…

When my children were young, I would read to them every night. It was a great way to connect with my kids at the end of the day. I enjoyed revisiting books of my youth and was also introduced to new book series that Justin loved. One of our favorites was Alexander and the Terrible,Continue reading “Some Days Are Like That…”

Apply Grace and Grit Liberally

Recently I created a short video for We Are Brave Together. The prompt was to share a piece of helpful advice for moms with children diagnosed with a disability. It was easy to talk about the two things that have helped me the most on my journey. I am talking about grit and grace. TheseContinue reading “Apply Grace and Grit Liberally”

Throw a Fish Some Flake

I tell everyone I am a caregiver FIRST. Caring for others brings me joy. I am proud of my ability to care for my family. I have also realized that my ability to care for others is dependent on how well I am caring for myself. When I take care of myself FIRST, things flow.Continue reading “Throw a Fish Some Flake”

Action Lessens the Fear

The last few days, I have not slept well. I have been tossing and turning. Waking up often and having bad dreams. I think Oprah said, “When you know better, you do better.” Well, Oprah, I disagree. My toolbox is full of techniques and protocols to optimize sleep. You can have ample knowledge, but ifContinue reading “Action Lessens the Fear”

Be a Unicorn or a Craig

Effie Parks, the amazing woman behind the Once Upon A Gene podcast, recorded a special Thanksgiving episode: Turkey Soup for the Soul. This year’s episode was focused on people who went above and beyond to help a family caring for a child with a rare genetic disorder. While Emily is not diagnosed, yet, I submittedContinue reading “Be a Unicorn or a Craig”

Thankful for the Memories

Our memories are not confined to square footage. They are not limited to a physical boundary. Infinite storage capacity is included with our brain’s processor. Rarely do we have to delete files to make room for additional ones. Isn’t that a beautiful thing? We don’t have to decide which ones we are going to saveContinue reading “Thankful for the Memories”

Caregiver Burnout: Understand it. Prevent it.

Caregiver burnout is a state of physical, emotional, and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and unconcerned. Burnout can occur when caregivers don’t get the help they need, or if they try to do more than they are able, physically, emotionally, or financially. ManyContinue reading “Caregiver Burnout: Understand it. Prevent it.”

A Care Plan is Vital for Caregivers

We must take care of ourselves so that we can care for others. We cannot pour from an empty cup, yet we try. Todd and I have worked hard to develop a care plan. We have created a community to support our family. This allows us time to take care of our needs. AbilityFirst isContinue reading “A Care Plan is Vital for Caregivers”