Whimsy to Woeful

It’s quickly approaching 1 am. I am sitting on the floor in the living room, surrounded by a sea of towels. A stack of clean. A stack of dirty and a stack of—I am not even sure at this point. Emily is leaning her head on my chest, and we are covered in a bigContinue reading “Whimsy to Woeful”

Caregivers Require Care Too

Caregiving is the most stressful and difficult job there is. I remember when my son was born. I delivered him and 24 hours later, my husband and I were sent home to care for this precious human on our own. Our doctor and friends referred us to reference books to guide us. The manuals wereContinue reading “Caregivers Require Care Too”

Hmm, How Can I Help?

Raising children is not easy. Caring for a child with medical needs or physical and intellectual disabilities adds to the challenges. The disease or disability can often take a family hostage, or at least that is how it feels. Your time is not your own. Your needs get kicked down the road. Sometimes they travelContinue reading “Hmm, How Can I Help?”

Are You Experiencing Caregiver Burnout?

Caregiver burnout is defined as a state of physical, emotional, and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and unconcerned. Caregiver burnout can occur when caregivers are not receiving adequate support, or doing more than they are physically, emotionally, or financially able to accomplish. OftenContinue reading “Are You Experiencing Caregiver Burnout?”

Stealing Time for ME

I have learned the hard way the value of taking care of myself. I used to believe that self-care was going to the spa for a massage or a weekend away at a retreat. While I do believe these are wonderful ways to refuel and recharge, the result is short term. They will rejuvenate theContinue reading “Stealing Time for ME”

Can We Just Stop Pretending?

This weekend our family went to look at homes a few hours from where we currently live. We are exploring our possibilities after Todd retires in a few years. We scouted out a few areas where we found homes that looked promising for our family. We booked an Airbnb in the community to get aContinue reading “Can We Just Stop Pretending?”

Caregivers Need Care Too

I believe caregiving is the toughest job on the planet. I have had a lot of jobs, and nothing compares. The exhaustion I often feel at the end of the day is brutal. Caregivers often feel like they have no choice or other options. They could relinquish the care to someone else, but they wantContinue reading “Caregivers Need Care Too”

Disability, Communication, and Covid

This week we all tested positive for Covid. This has been challenging for our family. We usually work as a team. If one person is down, another can pick up the slack. (Think Brené Brown’s GAP plan.) Well, we are all down. This would be okay if we could all retreat to our corners andContinue reading “Disability, Communication, and Covid”

Caregiver for a Season, Part of Our Lives Forever

As we walked into the store, Emily let out a squeal or a scream. Well, it was a high-pitched reaction that vocalized extreme emotion. Emily doesn’t regulate her emotions the same way we do. She may go from a cry to a laugh in a millisecond. Her squeals told me she was experiencing an emotionalContinue reading “Caregiver for a Season, Part of Our Lives Forever”