Disability, Communication, and Covid

This week we all tested positive for Covid. This has been challenging for our family. We usually work as a team. If one person is down, another can pick up the slack. (Think Brené Brown’s GAP plan.) Well, we are all down. This would be okay if we could all retreat to our corners andContinue reading “Disability, Communication, and Covid”

Going with the Flow

“I turn grass into wool”, said the sheep. “What is your superpower?” Gail Boenning asked this question in a recent 3musesmerge post. What a glorious question I thought. Her writing delights me and at the same time is educational and thought-provoking. It seems to be human nature to list the things we feel we areContinue reading “Going with the Flow”

Clean Teeth and Kindness

As I take Emily to the restroom to begin her evening routine, I engage in my mental routine to prepare. My inner chatter commences. You can do hard things. You were made for this. You are a caregiving badass. Tonight will go well. You have enough energy left to do this. You are doing thisContinue reading “Clean Teeth and Kindness”

Dogs, Beards, Emily, a Wedding, and God

Looking at all the incredible photographs from this past weekend fills me with gratitude and joy. My favorite nephew (please do not tell the others), Collin got married. The wedding was in Santa Barbara. The weekend included the rehearsal dinner on Friday followed by an incredible cocktail party on the rooftop of the Hotel Californian.Continue reading “Dogs, Beards, Emily, a Wedding, and God”

Time Lies

It’s only an hour, I thought. How can an hour be so disruptive? I was on a Zoom call with Bobby Kountz this weekend and he was discussing Timelines and said Time “lies”. He was discussing how we often take time for granted. We postpone things until something happens or changes. We tend to kickContinue reading “Time Lies”

Sorting the Pieces

Imagine a large granite table with four different puzzles on it. Each is 1,000 pieces, and every puzzle is unique. Your mission, should you choose to accept, is to complete the puzzles. There is ample time to finish the task, and you enjoy solving puzzles. You accept the challenge with excitement and enthusiasm. As youContinue reading “Sorting the Pieces”

A Letter of Gratitude to The Wiggles

This morning Todd and I were trying to reset Emily’s FireTV. Nothing we did seemed to restore YouTube. We worked at it for what felt like hours, but it was only ten minutes. What are we going to do if we cannot get this fixed? How will we survive without The Wiggles? Todd and IContinue reading “A Letter of Gratitude to The Wiggles”

Apply Grace and Grit Liberally

Recently I created a short video for We Are Brave Together. The prompt was to share a piece of helpful advice for moms with children diagnosed with a disability. It was easy to talk about the two things that have helped me the most on my journey. I am talking about grit and grace. TheseContinue reading “Apply Grace and Grit Liberally”

Action Lessens the Fear

The last few days, I have not slept well. I have been tossing and turning. Waking up often and having bad dreams. I think Oprah said, “When you know better, you do better.” Well, Oprah, I disagree. My toolbox is full of techniques and protocols to optimize sleep. You can have ample knowledge, but ifContinue reading “Action Lessens the Fear”