Recently I created a short video for We Are Brave Together. The prompt was to share a piece of helpful advice for moms with children diagnosed with a disability. It was easy to talk about the two things that have helped me the most on my journey. I am talking about grit and grace. TheseContinue reading “Apply Grace and Grit Liberally”
I wasn’t sure what I wanted to express this week. Some weeks I have many ideas, and I have trouble deciding what to write. At other times, the words flow as I sit to write. This week I decided to do something a little different. I love to reflect on the year as it isContinue reading “Dear 2021”
The last few days, I have not slept well. I have been tossing and turning. Waking up often and having bad dreams. I think Oprah said, “When you know better, you do better.” Well, Oprah, I disagree. My toolbox is full of techniques and protocols to optimize sleep. You can have ample knowledge, but ifContinue reading “Action Lessens the Fear”
Effie Parks, the amazing woman behind the Once Upon A Gene podcast, recorded a special Thanksgiving episode: Turkey Soup for the Soul. This year’s episode was focused on people who went above and beyond to help a family caring for a child with a rare genetic disorder. While Emily is not diagnosed, yet, I submittedContinue reading “Be a Unicorn or a Craig”
Caregiver burnout is a state of physical, emotional, and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and unconcerned. Burnout can occur when caregivers don’t get the help they need, or if they try to do more than they are able, physically, emotionally, or financially. ManyContinue reading “Caregiver Burnout: Understand it. Prevent it.”
We must take care of ourselves so that we can care for others. We cannot pour from an empty cup, yet we try. Todd and I have worked hard to develop a care plan. We have created a community to support our family. This allows us time to take care of our needs. AbilityFirst isContinue reading “A Care Plan is Vital for Caregivers”
This last week was incredible. I had the opportunity to connect with friends and family in person. There is something magical about getting together and sharing a meal, a meditation, a walk, a story. It is incredible when the experience fuels your soul and fills your cup. I was blessed to have several energizing interactionsContinue reading “Making Time to Connect”
Am I really going to write about golf this week? This is the thought that emerged as I sat down to write this weekend. It all started as I was decluttering Emily’s room and came across a few golf balls. They were strategically placed where Emily could not access them (and too high for meContinue reading “Golfer State of Mind”
A dead cell phone is useless. We need to think of ourselves as cell phones. We cannot continue to give without taking a moment each day to recharge. It is not sustainable. We will crash and burn. If that happens, and it will, then who will be there to take care of our loved ones that we fight for each day?
How have we made it work? How has our relationship lasted for over 36 years? There is no magic or secret sauce. The answer is simply not giving up on each other. We both refuse to quit.