I often hear it said that the days go slow, but the years go fast. Those words are hitting me hard today. Emily will be twenty-three this week. I can’t help but reflect on how fast the time has passed. It is hard to believe we have been on this journey for so long. IContinue reading “Joyful Celebration With a Side of Worry”
Category Archives: Life Unfiltered
Pismo is Making Waves in Accessibility
There is much we can find each day to complain about. These past few weeks, I have had some bones to pick and axes to grind over so many issues. Health insurance, parking, ADA awareness, and accessibility, just to name a few. Often, when a conversation starts about politics or the government, there are axesContinue reading “Pismo is Making Waves in Accessibility”
Wheelchair Woes and Insurance Blows
The wheels on the wheelchair go squeak, squawk, squeal. As I am walking Emily, the sound of her tires gets louder. They are completely bald. There isn’t any tread left. Huge gashes and complete chunks are missing. As we continue our walk, I begin to wonder if something bad could happen from pushing her onContinue reading “Wheelchair Woes and Insurance Blows”
Take the Wins and the Losses
Isn’t it funny that we all see things differently? We all have our own stories about any situation. As I planned to write about the week in Vegas with Corry, Justin, and Emily, I was filled with joy as I reflected on the trip. There were bumps in the road. Emily was A LOT onContinue reading “Take the Wins and the Losses”
Ready or Not It’s Vegas Time
“Are you really taking Emily to Las Vegas for the week?” asked Todd. His tone is full of dismay. Is he married to a crazy person about to do something insane? Well, I guess the answer is yes, and I might just be a little crazy, but I will never tell him that. I willContinue reading “Ready or Not It’s Vegas Time”
Emily Goes to the Lizzo Show
For all of you who came back this week to get the Lizzo concert 411, I want to say THANK YOU. I appreciate the support I received via texts, calls, and posts prior to the event. The encouragement and cheerleading did not go unrecognized and were needed. I barely slept on Thursday night. The anticipationContinue reading “Emily Goes to the Lizzo Show”
Disability and the Church: Our Family’s Story
When I was pregnant with Justin, I met a neighbor who was pregnant too. It turns out our children were due less than a week apart. We became fast friends. One week she invited us to attend her church. Todd and I had never attended church together in our marriage. I would go alone atContinue reading “Disability and the Church: Our Family’s Story”
Caregiving: A Group Project, Not a Solo Mission
During the pandemic lockdown, I shared the mental impact of isolation on our family. Emily was agitated, distraught, and angry. I was beginning to experience the taxation on my body, mentally and physically, as our family navigated the world with a limited supply of support and services. When schools reopened, and Emily’s after-school program resumed,Continue reading “Caregiving: A Group Project, Not a Solo Mission”
Grief Emerging From a Closet Purge
This weekend Todd is camping, and he even took Ben with him. I cannot believe how much quieter the house is without the young pup following me every minute of the day. Coco is content and thrilled to just be left alone. Enjoying the calm that surrounds her while she sleeps and eats. I amContinue reading “Grief Emerging From a Closet Purge”
Scorched Psyche, Slaughter, and Sleepless Nights
The pattern has repeated itself night after night for almost a week. I need to figure out how to disrupt it and clear the debris. I can only hope that my scorched psyche will heal once I empty the crazy in my mind. Writing has always been my cheapest form of therapy. For my sanityContinue reading “Scorched Psyche, Slaughter, and Sleepless Nights”
Conversation for Change 