Caregiver for a Season, Part of Our Lives Forever

As we walked into the store, Emily let out a squeal or a scream. Well, it was a high-pitched reaction that vocalized extreme emotion. Emily doesn’t regulate her emotions the same way we do. She may go from a cry to a laugh in a millisecond. Her squeals told me she was experiencing an emotionalContinue reading “Caregiver for a Season, Part of Our Lives Forever”

Concert Connections

A group of people gathered together for the same reason…a concert. The one thing they all have in common is a connection to the group, ensemble, or artist they are all there to experience. If you have ever been to any live show or concert, you have experienced that feeling of connection and belonging. TheContinue reading “Concert Connections”

Grief and Anniversaries

Grief cannot always be predicted and calculated. I have mentioned before that it comes in cycles and often comes to visit when you least expect it. May has been a month where I am experiencing a heaviness in my heart. I have been feeling sad, angry, and anxious. I have not slept well either. IContinue reading “Grief and Anniversaries”

Unexpected JOY in a Reluctant YES

This is going to be a weird weekend, I thought. There aren’t any football games this weekend. What will Emily and I do to occupy our day? For the past twenty-plus weeks, Emily and I have watched football. Saturdays have been a sprinkling of college games (this is the first year we have watched them).Continue reading “Unexpected JOY in a Reluctant YES”

Gratitude is a Practice

According to Merriam-Webster, Gratitude is a noun. Gratitude is defined as the quality of being thankful; readiness to show appreciation for and to return kindness. Is gratitude just a noun? I have always thought about gratitude as an action. Something we do. It is something to be practiced like yoga and meditation. I am gratefulContinue reading “Gratitude is a Practice”

Some Days Are Like That…

When my children were young, I would read to them every night. It was a great way to connect with my kids at the end of the day. I enjoyed revisiting books of my youth and was also introduced to new book series that Justin loved. One of our favorites was Alexander and the Terrible,Continue reading “Some Days Are Like That…”

Apply Grace and Grit Liberally

Recently I created a short video for We Are Brave Together. The prompt was to share a piece of helpful advice for moms with children diagnosed with a disability. It was easy to talk about the two things that have helped me the most on my journey. I am talking about grit and grace. TheseContinue reading “Apply Grace and Grit Liberally”