Writing is something that has always brought me joy. Taking pen to paper or tapping out words on a keyboard are tools I have used to process the experiences in my life. The good. The bad. The ugly. For the past several months, I have chosen to keep the thoughts in my head. Rarely haveContinue reading “From Martyrdom to Mindfulness: Embrace Gratitude”
Category Archives: Challenge and Obstacles
A Thief Called Dementia
Wide awake at 3 am. The dogs are hogging the bed. My husband is snoring, and my right foot is dangling off the side of the bed as I hug my pillow to keep me on the mattress. I realize my body is hovering on the edge like a coin on the coin drop machineContinue reading “A Thief Called Dementia”
Crossing a Caregiver Threshold
My nose alerts me to what awaits on the other side of the door before my hand ever reaches the knob. Before opening and crossing the threshold, I stop and make a choice. It can be a Manic Monday or Easy like Sunday morning. Taking in a long pause, hold for a beat (or two),Continue reading “Crossing a Caregiver Threshold”
The Hard Road Led to a Great Team Asset
Why is everything getting harder as Emily gets older? I thought things would get easier. Why is finding caregivers harder? Why is finding medical providers harder? Why is finding a dentist harder? These are the recurring thoughts that cycle through my head. I have loudly shared the long saga of trying to get a new wheelchairContinue reading “The Hard Road Led to a Great Team Asset”
Wheelchair Woes and Insurance Blows
The wheels on the wheelchair go squeak, squawk, squeal. As I am walking Emily, the sound of her tires gets louder. They are completely bald. There isn’t any tread left. Huge gashes and complete chunks are missing. As we continue our walk, I begin to wonder if something bad could happen from pushing her onContinue reading “Wheelchair Woes and Insurance Blows”
Your Parking Has Me Fuming!
As a young adult, I remember listening to Earl Pitts every morning on my way to work as he ranted about what was ticking him off that day. It was funny and sometimes offensive, and I laughed at something he said daily. This week, watch out! I’m about to go Earl up in here! DoContinue reading “Your Parking Has Me Fuming!”
Ready or Not It’s Vegas Time
“Are you really taking Emily to Las Vegas for the week?” asked Todd. His tone is full of dismay. Is he married to a crazy person about to do something insane? Well, I guess the answer is yes, and I might just be a little crazy, but I will never tell him that. I willContinue reading “Ready or Not It’s Vegas Time”
The Caregiver Cancelled…Again
Remember a few years back when CANCELLED was heard regularly on social media and on the news? For one reason or another, it was like everyone was getting cancelled. Actors, hosts, comedians, and politicians were cancelled. It was raining cancellations! No one was immune, but in the world of disability and disability care, cancellations haveContinue reading “The Caregiver Cancelled…Again”
Emily Goes to the Lizzo Show
For all of you who came back this week to get the Lizzo concert 411, I want to say THANK YOU. I appreciate the support I received via texts, calls, and posts prior to the event. The encouragement and cheerleading did not go unrecognized and were needed. I barely slept on Thursday night. The anticipationContinue reading “Emily Goes to the Lizzo Show”
Hard is the Path to Memorable Moments
There are so many things that I would love to do with Emily. There are places I think she may enjoy experiencing. Sometimes, I contemplate taking her on adventures to do some of these things. I think about taking her to a movie, a show, or a concert. I am really good at talking myselfContinue reading “Hard is the Path to Memorable Moments”
Conversation for Change 