How have we made it work? How has our relationship lasted for over 36 years? There is no magic or secret sauce. The answer is simply not giving up on each other. We both refuse to quit.
Category Archives: Uncategorized
The Suck In Being Stuck Together
Emily needs a life outside of the house with her peers. She needs people other than mom interacting with her. At the end of the day, I want us to delight in being around each other. I want to not only love each other but like each other again. I want to find the end of suck in the stuck together spiral we have been swirling in for months.
Grief Within the Beauty
Grief is a part of this journey. You can be grateful for the child you are blessed with and grieve things that will never be. There is beauty beyond the grief and grief within the beauty.
Celebration Minus Expectation
I threw away the manual on milestones and expectations for Emily’s progress and achievements. I started to practice acceptance and release control.
Glass Children, Mom Guilt, and GRACE
Glass child is a term used to describe the sibling of a person with a disability. The word glass reflects that often others see right through the typical sibling and focus only on the person with the disability.
Six Days On The Road…Fourteen to Go
We are six days into a three-week road trip across more states than I have been able to calculate. I did purchase a scratch-off map from Etsy to track but I have not had the energy at the end of the day to plot. The days have been long for Emily. She is happy toContinue reading “Six Days On The Road…Fourteen to Go”
Ripple the Ripple
This past week I started The 20 Ripple Challenge. I do most of the things that the challenge required, and daily random acts of kindness sounded great. How can that sound bad? While this is posting on day 8, and it is NOT too late to join. If you are interested in spreading some kindnessContinue reading “Ripple the Ripple”
Saying Yes to Others is Saying No to Ourselves
I have always been good at showing up for others. Most caregivers are. Showing up for ourselves is another story. Why do we do that? Why do we put what everyone else needs and desires above our own? I was reflecting on this and had some thoughts: If I say no, I will let someoneContinue reading “Saying Yes to Others is Saying No to Ourselves”
Relationship Built on Grace and Grit
I met my husband, Todd, when I was 14 years old. We went to school together and over time developed a friendship. When my dad died during my junior year, Todd was there for me. He never tried to fix anything and was there to listen. I was not interested in him as a boyfriend.Continue reading “Relationship Built on Grace and Grit”
Don’t Forget to Add the Grace
There are days when we respond to circumstances with abundant grace. We have things come at us and we adapt and pivot like a boss. I recently wrote that one of my superpowers was my ability to adapt and pivot. I think my superpowers were malfunctioning on Sunday. Sunday was typical. I got up byContinue reading “Don’t Forget to Add the Grace”