This last week was incredible. I had the opportunity to connect with friends and family in person. There is something magical about getting together and sharing a meal, a meditation, a walk, a story. It is incredible when the experience fuels your soul and fills your cup. I was blessed to have several energizing interactionsContinue reading “Making Time to Connect”
Am I really going to write about golf this week? This is the thought that emerged as I sat down to write this weekend. It all started as I was decluttering Emily’s room and came across a few golf balls. They were strategically placed where Emily could not access them (and too high for meContinue reading “Golfer State of Mind”
A dead cell phone is useless. We need to think of ourselves as cell phones. We cannot continue to give without taking a moment each day to recharge. It is not sustainable. We will crash and burn. If that happens, and it will, then who will be there to take care of our loved ones that we fight for each day?
How have we made it work? How has our relationship lasted for over 36 years? There is no magic or secret sauce. The answer is simply not giving up on each other. We both refuse to quit.
Emily needs a life outside of the house with her peers. She needs people other than mom interacting with her. At the end of the day, I want us to delight in being around each other. I want to not only love each other but like each other again. I want to find the end of suck in the stuck together spiral we have been swirling in for months.
Grief is a part of this journey. You can be grateful for the child you are blessed with and grieve things that will never be. There is beauty beyond the grief and grief within the beauty.
I threw away the manual on milestones and expectations for Emily’s progress and achievements. I started to practice acceptance and release control.
Glass child is a term used to describe the sibling of a person with a disability. The word glass reflects that often others see right through the typical sibling and focus only on the person with the disability.