Once upon a time there was a caregiver that exerted Herculean effort to fit her family into the typical holiday jukebox. After putting her children to bed, she stayed up late checking off names from a 3-page list of Christmas card recipients. She baked cookies to deliver to local family and friends. This caregiver wouldContinue reading “A Holiday Playlist that Works for Your Family”
Category Archives: Health and Wellness
The Hard Road Led to a Great Team Asset
Why is everything getting harder as Emily gets older? I thought things would get easier. Why is finding caregivers harder? Why is finding medical providers harder? Why is finding a dentist harder? These are the recurring thoughts that cycle through my head. I have loudly shared the long saga of trying to get a new wheelchairContinue reading “The Hard Road Led to a Great Team Asset”
Caregiving: A Group Project, Not a Solo Mission
During the pandemic lockdown, I shared the mental impact of isolation on our family. Emily was agitated, distraught, and angry. I was beginning to experience the taxation on my body, mentally and physically, as our family navigated the world with a limited supply of support and services. When schools reopened, and Emily’s after-school program resumed,Continue reading “Caregiving: A Group Project, Not a Solo Mission”
Can Caregivers Win the Numbers Game?
Extreme caregivers have more days that can feel overwhelming, stressful, and exhausting than most people. We also know our mind wants to protect us, and it wants the path of least resistance. This can be a challenge. Challenging days are stressful, and our brain wants to relieve our suffering as quickly as possible. As IContinue reading “Can Caregivers Win the Numbers Game?”
Extreme Caregiving Can Influence Our Choices
I was recently described as an extreme caregiver. I was unfamiliar with the term and unsure if it was an accurate description. Anything that includes the word extreme is not something that I find relatable. I am moderate in most things. What is extreme caregiving, and does the label fit? Lisa Freitag, the author of Extreme Caregiving: TheContinue reading “Extreme Caregiving Can Influence Our Choices”
Scorched Psyche, Slaughter, and Sleepless Nights
The pattern has repeated itself night after night for almost a week. I need to figure out how to disrupt it and clear the debris. I can only hope that my scorched psyche will heal once I empty the crazy in my mind. Writing has always been my cheapest form of therapy. For my sanityContinue reading “Scorched Psyche, Slaughter, and Sleepless Nights”
Creating a Moment of Care in the Chaos
Raising children is accompanied by a list of never-ending tasks. The to-do list is never finished. When our child (or adult) has complex developmental or intellectual disabilities, the list is long. We are expected to work a full-time job, maintain the home, transport our kids to countless therapy and medical appointments, along with school andContinue reading “Creating a Moment of Care in the Chaos”
Recovering Puddle Jumper
I went from whimsy to woeful and back again in the past several weeks. I appreciate those of you that have come along for the wild emotional ride. Amid life being Lifey, I have neglected to celebrate some wins. Noteworthy things happened in the past few weeks, but I have minimized them. This is commonContinue reading “Recovering Puddle Jumper”
I See a Little Whimsy on the Horizon
What a difference a day makes, I thought. Today I feel like I can breathe again. There is hope on the horizon. No, nothing has really changed, except maybe my attitude. I chose to stay in the trenches for the past few weeks without trying to climb out. I felt isolated, sad, and overwhelmed. EmbracingContinue reading “I See a Little Whimsy on the Horizon”
Choosing Guilt Improved My Mental Health
Ever since I was a child, I prioritized the needs of others over my own needs. I never wanted to let others down. My desire to meet the needs of family, friends, and even strangers generally came before my willingness to recognize and care for my needs. On the rare occasion that I did somethingContinue reading “Choosing Guilt Improved My Mental Health”
Conversation for Change 