Once upon a time there was a caregiver that exerted Herculean effort to fit her family into the typical holiday jukebox. After putting her children to bed, she stayed up late checking off names from a 3-page list of Christmas card recipients. She baked cookies to deliver to local family and friends. This caregiver wouldContinue reading “A Holiday Playlist that Works for Your Family”
Tag Archives: #specialneedsfamily
Caregiver Truth Discovered On a Boat One Day
Caring for my daughter is the hardest thing I have ever done. Her care is ever-present. Emily does not possess the ability to assist in her care. Every day, I prepare her meals, feed her, dress her, give her medication, and handle her personal hygiene. The moment the last item is checked off the list,Continue reading “Caregiver Truth Discovered On a Boat One Day”
Joyful Celebration With a Side of Worry
I often hear it said that the days go slow, but the years go fast. Those words are hitting me hard today. Emily will be twenty-three this week. I can’t help but reflect on how fast the time has passed. It is hard to believe we have been on this journey for so long. IContinue reading “Joyful Celebration With a Side of Worry”
The Hard Road Led to a Great Team Asset
Why is everything getting harder as Emily gets older? I thought things would get easier. Why is finding caregivers harder? Why is finding medical providers harder? Why is finding a dentist harder? These are the recurring thoughts that cycle through my head. I have loudly shared the long saga of trying to get a new wheelchairContinue reading “The Hard Road Led to a Great Team Asset”
Take the Wins and the Losses
Isn’t it funny that we all see things differently? We all have our own stories about any situation. As I planned to write about the week in Vegas with Corry, Justin, and Emily, I was filled with joy as I reflected on the trip. There were bumps in the road. Emily was A LOT onContinue reading “Take the Wins and the Losses”
Different Path and Different Journey
“Normality is a paved road: It’s comfortable to walk, but no flowers grow.”-Vincent Van Gogh Cradled in her arms is her first grandchild. At two months of age, Wyatt craves the comfort of a warm embrace and the sway of arms that hold him while he sleeps. As I watch Patti gently rocking Wyatt toContinue reading “Different Path and Different Journey”
New Year, Recurring Fear
There is something beautiful about starting a new year. Each year is a recurring clean slate. The past year is behind us, and a new year is ahead. I was extra excited that January 1st fell on a Sunday this year. I love to plan my week on Sunday mornings. I time block my week,Continue reading “New Year, Recurring Fear”
Advocacy Her Way
Learning has always been something I enjoyed. I was the kid that could not wait to go to school. I loved the discovery and excitement in each new day. I continue to study, learn, grow, and be curious. Throughout my educational journey, I have had some pretty wonderful (and not-so-wonderful) teachers, but my greatest teacherContinue reading “Advocacy Her Way”
Recovering Puddle Jumper
I went from whimsy to woeful and back again in the past several weeks. I appreciate those of you that have come along for the wild emotional ride. Amid life being Lifey, I have neglected to celebrate some wins. Noteworthy things happened in the past few weeks, but I have minimized them. This is commonContinue reading “Recovering Puddle Jumper”
Disabled Children and Traveling Challenges
When Todd and I were married, we dreamed of all the places we would travel to and the adventure we would share. Before we had children, we would take trips. We mostly traveled the Pacific Northwest and a few trips to Mexico. We did not have the finances to travel overseas. One day, after theContinue reading “Disabled Children and Traveling Challenges”
Conversation for Change 