Why isn’t the joy bubble refilling faster? I thought we were writing something whimsical and fun this week? What is wrong with you? Snap out of it. (The A side of my chatter) Give yourself a break. November is already a weird month for you. You often get the blues around this time of theContinue reading “Not the Sanctuary of My Dreams”
Category Archives: Challenge and Obstacles
Caregivers Require Care Too
Caregiving is the most stressful and difficult job there is. I remember when my son was born. I delivered him and 24 hours later, my husband and I were sent home to care for this precious human on our own. Our doctor and friends referred us to reference books to guide us. The manuals wereContinue reading “Caregivers Require Care Too”
Hmm, How Can I Help?
Raising children is not easy. Caring for a child with medical needs or physical and intellectual disabilities adds to the challenges. The disease or disability can often take a family hostage, or at least that is how it feels. Your time is not your own. Your needs get kicked down the road. Sometimes they travelContinue reading “Hmm, How Can I Help?”
Exchange Excuses for Reasons
Last night I wanted chocolate. It was after 7 pm. I am not a woman who eats after 7 pm I reminded myself. My brain ignored this gentle reminder. It proceeded to recite why I should eat the chocolate. My mind provided a multitude of justifications. If you don’t eat it, someone else will. ItContinue reading “Exchange Excuses for Reasons”
Decorating My Funk With Some Live Music
“If you find yourself in a funk—don’t decorate it.” I came across this quote in one of my journals this week. It is a quote from Elizabeth Gilbert’s book Big Magic. This book is a favorite of mine. It is uplifting, inspiring, and well–magical. Gilbert warns that when you are feeling the blues, it isContinue reading “Decorating My Funk With Some Live Music”
The Beauty in A Pause
“Let’s just take a pause”, he said. As he finished the sentence, the floodgates opened. I began to cry. There I was sitting in the office of this man I had just met for the first time crying “the ugly cry”. There was something about what he said that released fear, anxiety, and frustration thatContinue reading “The Beauty in A Pause”
Caregivers Need Care Too
I believe caregiving is the toughest job on the planet. I have had a lot of jobs, and nothing compares. The exhaustion I often feel at the end of the day is brutal. Caregivers often feel like they have no choice or other options. They could relinquish the care to someone else, but they wantContinue reading “Caregivers Need Care Too”
Disabled Children and Traveling Challenges
When Todd and I were married, we dreamed of all the places we would travel to and the adventure we would share. Before we had children, we would take trips. We mostly traveled the Pacific Northwest and a few trips to Mexico. We did not have the finances to travel overseas. One day, after theContinue reading “Disabled Children and Traveling Challenges”
A Cup of Coffee and Greater Connection
According to worldpopulation.com, 50% of marriages in the United States end in divorce. That means for every wedding you have attended, half will end in divorce. If the couple has a child with a disability, the divorce rate jumps to 80%, and if the child is severely disabled, some figures show the rate as highContinue reading “A Cup of Coffee and Greater Connection”
Disability, Communication, and Covid
This week we all tested positive for Covid. This has been challenging for our family. We usually work as a team. If one person is down, another can pick up the slack. (Think Brené Brown’s GAP plan.) Well, we are all down. This would be okay if we could all retreat to our corners andContinue reading “Disability, Communication, and Covid”
Conversation for Change 